ORGESTRA DCs outreach to high schools

ORGESTRA DCs outreach to high schools

This month two of our DCs have been undertaking outreach activities to high school students at two schools in Germany. Martje Grensemann DC1 explains more: “Last week, I visited my former high school, Gymnasium am Mühlenberg in Bad Schwartau, and gave a full-day...
May is Cystic Fibrosis Awareness Month

May is Cystic Fibrosis Awareness Month

This month ORGESTRA supports  Cystic Fibrosis Awareness by highlighting the umet need and the advances in personalised medicine that the project aims to contribute to. 1 2 3 4 5 6 7 8 Thanks to DC7 Mark Leahy for preparing...
ORGESTRA supports Cystinosis awareness day

ORGESTRA supports Cystinosis awareness day

What is Cystinosis? Cystinosis is a rare genetic disease that affects about 1 in 100,000 to 200,000 people worldwide. It is caused by a mutation in a gene called CTNS, which provides instructions for making a protein called cystinosin. This protein’s job is to remove...